I'm deciding to blog about this subject for 2 reasons: this blog is our family diary and I'd like to have it documented and also it may explain some of my future negative, bitchy, senseless posts.
I've mentioned before that after having Lauren 19 months ago I just haven't felt the same. I attributed all of my aches and pains to hormones, something that's not all that uncommon. I figured I did quite a number on my body in a short amount of time. Being pregnant or nursing from 2004 to 2010 - it can screw a girl up, right? But months after I finished nursing Lauren and things still didn't get better I decided to pursue it. Why am I in my mid-30's yet some days my feet hurt so much I can hardly walk? My fingers hurt so that typing is uncomfortable? My shoulders hurt so that sleeping on my side isn't even an option? None of it made sense so I went from my OB to my PCP to a Rheumotologist, and then to a second Rheumotologist. I've had more blood taken in the last 2 months than you can imagine. All of my bloodwork is consistent in telling us one thing - I have inflammation in my body. DUH! But what does that mean? Well, long story short it's not Lupus, and not RA. All of the symptoms I have mimic both conditions but there are just a few minor things I do not have which can eliminate those. That's a good thing. Finally, the conclusion is that I have UCTD (undifferentiated connective tissue disease). It's the least destructive of the other arthritis-based conditions so that's good. What's not good is that it still hurts. Some days are great, some days are awful, and there is no telling when or what or why. That's frustrating. I'm a month in to taking a drug given to RA and Lupus patients which should be effective in minimizing my symptoms once it kicks in. Prednisone works if I have a flare up but other than that I hope to be steriod-free. Fatigue is one symptom as well so I do nap now and then but I try really hard to have the kids not just see me laying around. This is not something they need to know about although on bad days I let them know they need to chill out and entertain themselves a bit more. Honestly, they are too busy fighting with each other to notice that I'm laid out a little. To Chris this is all an invisible, imaginary condition that I should be able to suck up and get over. Isn't that nice?
Isn't all of that fascinating? It may explain my more snarky of posts, however. Somedays I just feel awful which pretty much turns me into a bitch. It's just how it is. It makes me sad that at my age I have this but it is manageable (for the most part) and just something to make me appreciate the good days even that much more.
Anyone else have this invisible, imaginary condition? Or know anyone who is pretending to have it? I'd love to hear someone else's experience.